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Filtering by Tag: cancer

I Believe the Children are Our Future 💛

Ashley Siebrecht

I can't believe it's already the end of September!  That be-otch, Irma, messed up our plans for this month, but we were very lucky that we were able to get back to work so quickly!

September is a very important month around here; it's Childhood Cancer Awareness month. A cause that is dear to my heart. A few years ago, a sorority sister of mine was supporting her son with all she had while he fought Neuroblastoma with all he had. This was when I started researching childhood cancer and I was shocked and deeply saddened by what I learned.

Here are a few Childhood Cancer stats:

  • Every 36 minutes, a child is diagnosed with cancer in the United States
  • Cancer is the leading cause of death by disease in children under 15
  • This is not a RARE disease - 1 in 330 children (ages 0-19) will be diagnosed with cancer
  • 1 of 5 children diagnosed with cancer will lose their battle to the disease

All that being said, childhood cancer is still severely underfunded by the government with less than 4% of research money allocated by the National Cancer Institute. The funds to keep the doctors and researchers working for the kids is mainly funded by charities. JOM supports the National Pediatric Cancer Foundation whose Sunshine Project is bringing together top doctors and researchers to speed up the development of less toxic and more targeted treatments to increase the survival rate of childhood cancer.

If you're not totally convinced that this is an area that needs our help and attention, just read this excerpt from a woman interviewed by Humans of New York

“It was one of the most despicable things I’ve seen in my career. It was ten years ago. There were about twenty families being treated here whose kids had Neuroblastoma. The survival rate was about ten percent. One of our doctors developed an antibody that he thought was promising. But he’d run out of money. So he called a town hall meeting of sorts. He brought all the families together and told them he needed two million dollars. And they told him: ‘We’ll find it.’ We refer to them now as the Band of Parents. These people were desperate. Many of them were broke. And this burden was being placed on them. It made me sick. But they went back to their communities. They baked cookies, and organized bike rides, and held fundraisers named after their children. And they raised the money. All two million. And it worked. Dr. Cheung’s antibody worked. Today the survival rate is sixty percent. But it was so sad. Because deep in their hearts those parents knew the antibody would not be ready in time to save their child. But they raised the money anyway.” 

Whitney Houston said (technically, sang) it best - I believe the children are our future. These children, if they win their fight, will be the ones to grow up and change the world for the better. We have to fight for them!

Just One More is excited to introduce our Fight Like A Kid bracelet! 100% of the proceeds from this bracelet will be donated to the Pediatric Cancer Foundation to help fund better treatments for our kids! While September is almost over, we will be selling these bracelets year-round to help increase awareness and funding for Childhood Cancer research!

Xox,

Ashley

Love Actually IS All Around

Ashley Siebrecht

com·mu·ni·ty

\kə-ˈmyü-nə-tē\
 

(noun) a feeling of fellowship with others, as a result of sharing common attitudes, interests, and goals.


This weekend our community joined together to raise money for Karter, a two-year-old who was recently diagnosed with Neuroblastoma. Local businesses donated gift certificates, products, and services for raffle items. Friends of the family put together amazing baskets with all of the goodies, each one valued over $100. The event was hosted at a popular Jupiter restaurant, Guanabanas, who graciously donated the proceeds from Tito’s Vodka sales to the cause.

Just One More donated bracelets for the raffle, but we also volunteered our time. And I am so glad we did! It was amazing to see the community come together! Some were really excited about the fabulous list of prizes but some were just happy to donate to the cause and show support to the family. $24,000 was raised in a few short hours! This means that the Strands can focus fully on “Karter the Destroyer” and not have to worry about the medical and personal bills piling up while they are helping him fight the biggest battle of his life. 

Seeing this all unfold in front of my eyes (in 500-degree weather 😓) was so uplifting. It was so encouraging to see something so wrong turn in to something so right. There is beautify everywhere if we choose to see it. With all the craziness that seems to be happening in our world right now; politics, riots, shootings, it’s humbling to see that love actually is all around 💗 

Within a month of Karter receiving his diagnosis, another member of our Jupiter family was diagnosed with Leukemia except this was not her first time. Kelly was first diagnosed in November of 2014.  She endured 8 months of treatment, fought like hell and was finally in remission in July 2015! After winning her cancer battle, she felt moved to help others and started her own non-profit to help raise money for others going through cancer. A Second Go was established to raise money & services to provide cancer fighters & survivors with the tools to have a successful ‘second go’ at life. In addition to starting her own non-profit, she raised money this year as a candidate for The Leukemia & Lymphoma Society’s 2016 Man & Woman of the Year Campaign! She’s pretty rad, right?!?

After finding out the leukemia was back and using a few choice words to describe how she was really feeling, Kelly rallied and decided that she would go to Boston for treatment where she could participate in a clinical trial that may help save herself and others in the future. Even when being handed the worst news she could imagine, she is still thinking of others! I am in awe of her courage and inspired by her ability to remain positive and darn-right funny through of all this! You have to read her blog, she’s got great perspective and is a natural writer! 

We now have the opportunity to come together to help Kelly the same way we helped Karter. This cancer business is not inexpensive and Kelly has quite the fight in the months ahead. Kelly has a GoFundMe page where you can donate directly to her fight. Anything that you can do, is so greatly appreciated! It may not seem like $5 makes a difference, but it does. Additionally, this Thursday we will be hosting a Sip & Shop event at Vault 39 from 5pm to 8:30 where a portion of the proceeds will go directly to benefit Kelly! If you are not in the area but would like to participate by shopping (we fully encourage sipping from your couch too 🍷) you can ensure a portion of your purchase will be donated by using ‘KICKINITFORKELLY’ as the coupon code at checkout!

To me, the word community is synonymous with friendship. You don’t have to live near each other to have a feeling of togetherness. By definition, community is a feeling of fellowship with others, as a result of sharing common attitudes, interests, and goals. I feel certain that most people share a common attitude with Kelly toward cancer!!! Let’s help Kelly kick cancer’s ass so she can go back to changing the world and giving others ‘A Second Go’ ❣

Xox,

 

Ashley